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2021 Thought Leader EHTEL Symposium

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Imagining a citizen-centric health data ecosystem: A quick overview

Today, Europe’s healthcare systems are already seeing a massive shift in the debate about the use of digital technologies and data. Movement is taking place from discussions about patients’ own access to their health and care data towards a new focus on citizen’s control of a variety of forms of data. Many questions are pending about citizens’ capacity to share their data and what they may get in return. On the horizon are many new data services and novel sources of data. The challenge is how to govern and regulate these world-changing developments from a European angle.

EHTEL’s 2021 Thought Leaders Symposium helped EHTEL members, friends, and the wider community to understand and potentially navigate and govern the future of European health data space, enable citizen-centric data sharing, and understand a variety of technical and societal developments. Key new trends in terms of digital health services and systems explored included medical devices, artificial intelligence (AI), and genomics.

This 2021 Symposium built on EHTEL’s associated journey towards Imagining 2029, and created synergies with the association’s 2021 four positions taken on the European Health Data Space.

Digital transformation is key. Each year of the upcoming period until 2030 incorporates potentially great changes in the health and care fields. In the surge to create citizen-centric health data ecosystems that are both caring and sharing, it is imperative to ensure that no-one gets left behind. “We should put patients and citizens at the heart of everything we do,” emphasised George Crooks of the Digital Health and Care Innovation Centre (Scotland), co-moderator of the Symposium.

The Symposium’s rich portfolio of individual presentations are now online.

In the spirit of knowledge exchange and education, each session can be viewed as stand-alone or as a series. Outcomes of some of the many, interactive ePolls held during the event, and of the discussions and debates held now feature on EHTEL’s web page. Plenty of resources – blogs, documents, and publications – which EHTEL members have suggested in relation to the Symposium’s topics are all available too. A summary video will be uploaded in the new year. Supporting partner, Xpeer, helped us by putting the individual Symposium videos online for the first month. Free access for one month(Access code: EHTELXPEER21)

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🧘 Stay healthy while online!

EHTEL believes firmly in the importance of good health, self-management of health, and improving health – even while massive amounts of people’s work is now done online. Therefore, not only were plentiful breaks built into the Symposium, but also one of the breaks included a short online yoga session. EHTEL’s own Luc Nicolas led the way!

Key statistics

At EHTEL’s 2021 Thought Leaders’ Symposium, there were:

- A concluding summary on “What does a citizen-centric data ecosystem mean?”.

 
📝To know more about the programme, the participants, and speakers, visit the Symposium event page
 

Sessions' summary

 
 
 

30 November 2021 | 14:00 - 17:30 


 

[1] Introduction: Citizen-centricity – going from digital to data

 
 
 
 
 
Cat Macauley, the Scottish Government, Scotland, United Kingdom
 

 

 

 

 

 

 

 

 

[2] Enabling citizens to be in better control of their data

 
 

 

Speakers:

Ernst Hafen, the Institute of Molecular Systems Biology, Switzerland
 

 

 

 

 

 

 

 

 

 

Sharmini Alagaratnam , DNV, Norway
 

 

 

 

 

 

 

 
 

 


[3] Creating better health through citizens’ generated data

 
 
 

 

Speakers:

Saara Malkamaki, SITRA, Finland
 

 

 

 

 

 

 

 
 
 

 

Markus Kalliola, SITRA, Finland

 

 

 

 

 

 

 
 
 
 

 Dipak Kalra, i-HD, United Kingdom

 

 

 

 

 

 

 
 
 
 
 Mariana Meira, SPMS, Portugal
 

 

 

 

 

 

 

 
 
 
 
 Thomas Grandell, Etsimo Healthcare Oy, Finland
 

 

 

 

 

 

 

 
 
 
 

[4] Digital health solutions: Getting people on board

 
 
 

 

Speakers:

Michael Johansen, MedCom, Denmark

 

 

 

 

 

 

 

 

 

 

Bart de Gans, MedMij, The Netherlands

 

 

 

 

 

 

 

 
 
 
 
 

 Mike Ogonovsky, TEC Cymru & Aneurin Bevan University Health Board, Wales, United Kingdom

 

 

 

 

 

 

 

 
 
 
 

1 December 2021 | 14:00 - 17:30 


 

[5] Day 2 Opening | Wrap-up of day 1

 
 

 


 [6] Digital Health Services, from innovation to prescription

 
 
 

 

Speakers:

Hannes Schlieter, Technische Universität Dresden, Germany

 

 

 

 

 

 

 

 
 
 
 
 

 Lloyd Humphreys, ORCHA, United Kingdom

 

 

 

 

 

 

 

 
 
 
 
 

 Marco Benedetto, Kelyon, Italy

 

 

 

 

 

 

 

 
 
 
 

[7] Artificial Intelligence for health – Hitting the reality wall

 
 
 

 

Speakers:

 Guido Panfili, Almawave, Italy

 

 

 

 

 

 

 

 

 

 

Rachelle Kaye, Assuta Medical Centers, Israel

 

 

 

 

 

 

 

 
 
 
 
 

 Panagiotis Bamidis, AUTH, Greece

 

 

 

 

 

 

 

 

 


[8] Forward-looking session - Genomics for digital health services

 
 
 

 

Speakers:

Lili Milani, Estonian Genome Centre, Estonia

 

 

 

 

 

 

 

 
 
 

 

Ivo Gut, CNAG-CRG, Spain

 

 

 

 

 

 

 

 

 


 

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